Trusted Resources: Community Center
Advocacy for MPS and ML
Advocacy is the best way for the MPS and ML community to share our stories with lawmakers and policy influencers who can help make a difference on a federal level. Federal policies can increase life-saving medical research and access to care for MPS patients.
The Advocacy Committee focuses on a number of goals throughout the year, including regular reviews and calls to action regarding MPS and ML legislation, carefully crafted appropriations language, reaching and spreading our message to new members, collaborating with the rare disease community as a whole, advocacy training webinars and growing and fostering relationships with key decision-makers.
Source: https://mpssociety.org/advocate/
BookmarkRelated Content
-
Mucopolysaccharidoses (MPS) and Gene TherapyMucopolysaccharidoses (MPS) are a group ...
-
Extraordinary Experiences ProgramProgram provides grants of up to $1000 t...
-
Cure Sanfilippo Foundation – InstagramCure Sanfilippo Foundation is a non prof...
-
Mucopolysaccharidosis Type I Disease Prevalence Among Patients With Idiopathic Short Stature in Saudi Arabia: Protoc...Since the underlying cause of idiopathic...
-
MPSBase: Comprehensive Repository of Differentially Expressed Genes for MucopolysaccharidosesMucopolysaccharidoses (MPS) are lysosoma...
-
Fatal Care Research FoundationFatal Care Research Center inaugurated a...
-
Daily Living With MPS and Related DiseasesDealing with your child’s diagnosis wi...
